b'PALLIATIVE CARE RETREAT & RESEARCH SYMPOSIUM74:306:00 pmChallenges and Updates in Palliative Care Research DAY 2 CONTINUEDBREAKOUT 1 BREAKOUT 3Palliative Care Ethics and Law: When are you ready and how do you start? Beyond the Four Principles Advice for the Next Generation of MentorsAmber Comer, PhD, JD Katherine Ornstein, MD; Alex Smith, MDBeneficence, nonmaleficence, autonomy, and justiceWe welcome aspiring mentors, junior mentors, and are the pillars of bioethics. While it is common forsenior mentors to engage in an interactive discussion bioethics education to focus on these four principles,(dare we say podcast-style discussion?) about developing the field of palliative care lends itself to ethicalthe next generation of mentors in palliative care considerations beyond these four principles. The lawresearch. Key questions that we will discuss include: plays a pivotal role in determining how ethical principlesWhy mentor? Does mentoring fit with your other are applied during clinical practice. This talk addressespriorities? What are the positives of mentoring? What ethical and legal considerations that affect palliativeare the downsides or tradeoffs? When are you ready care practice, including withholding versus withdrawingto start mentoring? How do you get started? Can you care, the doctrine of double effect, and best interestfund your time for mentoring? You hope for the best versus substituted judgement. Additionally, this talkwith your mentoring experience, but what happens will explore the role of culture, religion, and disparitieswhen things dont go as youd envisioned? We hope in palliative care ethics.that senior mentors will join to give advice, junior mentors will join to relate their experience in the BREAKOUT 2 throes of starting their mentoring journey, and those Conducting Pragmatic Trials with Large Healthwho aspire to mentor will join to ask questions and Systems: The Good, the Bad, and the Ugly relate hopes and fears about mentoring.Scott Halpern, MD, PhD BREAKOUT 4This session will begin by Dr. Halpern briefly sharingEnvisioning Future Research Directions in selected experiences leading pragmatic randomizedFamily Palliative Care Focused on Family trials embedded within several of the largest healthCaregiverssystems in the U.S. He will reflect on the immense value of the knowledge such trials are able to produceAlison Applebaum, PhD; J. Nicholas Dionne-Odom, PhD, RN(the Good), the foreseeable challenges to success andFamily caregivers provide the majority of complex care work required to surmount those challenges (the Bad),to patients with serious illness and large proportions and the unforeseeable problems that invariably ariseexperience distress and poor psychosocial and physical (the Ugly) and what can be done to minimize theirhealth as a result. Yet, high quality research that impact (the Beautification). The majority of the sessiondevelops, tests, and implements real-world support will be an interactive discussion of challenges allfor caregivers is limited and, furthermore, is struggling attendees may be facing in trying to conduct researchto keep pace with societal and technological developments. at scale, with feedback and guidance suggested byIn this session, two cancer caregiving researchers will the group. summarize their most recent intervention work in this space, highlight foreseeable trends that will impact family caregiving over coming decades, and facilitate an audience conversation about priorities for future palliative care research with caregivers.'